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大家好 Hello everyone.2 我是山姆 I'm Sam, 才满17岁 and I just turned 17.几年前 高一之前 A few years ago, before my freshman year in High School, 5 我想要在校军乐队（Foxboro福克斯波罗高中）里打军鼓 I wanted to play snare drum in the Foxboro High School Marching Band, 6 我十分想要实现这个梦想 and it was a dream that I just had to accomplish.7 不过问题是每个军鼓套件 But each snare drum and harne 8 重量大约40磅左右（18公斤）weighed about 40 pounds each, 我患有一种叫做Progeria（早年衰老症）的病 and I have a disease called Progeria.10 以至于我本身才只有50磅（23公斤）左右 So just to give you an idea, I weigh only about 50 pounds.11 所以 理论上 我根本没有办法身挂普通尺寸的军鼓 So, logistically, I really couldn't carry a regular sized snare drum, 12 因此乐队主管只能派我在 and because of this the band director aigned me to play 13 中场表演时演奏后排打击乐器 pit percuion during the halftime show.14 当时的后排打击乐器很有趣 Now pit percuion was fun.囊括了许多非常酷的节奏打击乐器 It involved some really cool auxiliary percuion instruments, 16 像邦哥小对鼓 定音鼓 like the bongos, timpani, 17 蒂姆巴尔鼓以及牛铃 and timbales, and cowbell.虽然这些是很有趣 So it was fun,但我还是沮丧极了 因为这些跟军乐都全然无关 but it involved no marching, and I was just so devastated.20 但是我坚信没有任何事能阻挡我 However, nothing was going to stop me 21 在中场表演时 from playing snare drum with the marching band 22 在军乐队里打军鼓 in the halftime show.所以一位工程师应我与我家人之邀 为我量身设计了 So my family and I worked with an engineer to design 24 一个特制的军鼓背带 a snare drum harne 它很轻以至我能方便的穿上它 that would be lighter, and easier for me to carry.26 经过不懈努力 So after continuous work, we made 我们做出了一个仅有6磅（2.7公斤）左右的军鼓套装装置 a snare drum apparatus that weighs only about 6 pounds.28（鼓掌）(Applause)我想让大家更深入了解一下早衰症的情况 I just want to give you some more information about Progeria.现在世界上仅只有350例 It affects only about 350 kids today, worldwide.31 是一种极为罕见的疾病 So it's pretty rare,32 它的症状体现在： and the effects of Progeria include:
紧肤、体重缺增、成长萎缩 tight skin, lack of weight gain, stunted growth, 34 以及心脏病 and heart disease.35 去年我母亲以及她的科学家团队 Last year my Mom and her team of scientists 36 成功发表了第一个早衰症治疗范本 published the first succeful Progeria Treatment Study，37 因此我应邀接受 NPR（美国国家广播）的采访 and because of this I was interviewed on NPR, 38 主持人约翰汉密尔顿问我 and John Hamilton asked me the question: 39 “关于你 大家最需要了解什么？” “What is the most important thing
“关于你 大家最需要了解什么？” that people should know about you?”
我的回答很简单 And my answer was simply that
我的生活很快乐 I have a very happy life.43（鼓掌）(Applause)
虽然我在生活中遇到很多阻碍 So even though there are many obstacles in my life，45 绝大多数都归咎于早衰症 with a lot of them being created by Progeria, 46 我不想人们因此为我感到难受 I don't want people to feel bad for me.47 我从不在乎这些障碍 I don't think about these obstacles all the time, 48 无论如何我都能尽力克服它们 and I'm able to overcome most of them anyway.49 因此我今天才能坐在这和大家 分享我快乐的人生哲学 So I’m here today, to share with you my philosophy for a happy life.50 所以对我而言这种理念有三个方面 这一点引自著名的弗瑞斯布依勒（1986年电影《咪走堂》主角）So, for me, there are 3 aspects to this philosophy.51 时光如梭，若不止步环顾四周，你可能将错过一些值得留意的东西——Ferris Bueller（《咪走堂》）So this is a quote from the famous Ferris Bueller.52 第一点我的人生哲学理念是 The first aspect to my philosophy is that
命里无时莫强求 I’m okay with what I ultimately can’t do
因为我可以做的仍有很多很多 because there is so much I can do.55 人们有时会问我 Now people sometimes ask me questions like,56 “伴随着早衰症的生活是不是很艰难？” “Isn’t it hard living with Progeria?”, or
又或 “患有早衰症的你每日都会面临什么样的挑战?” “What daily challenges of Progeria do you face?”
我想说 即使我有早衰症 And I’d like to say that, even though I have Progeria，59 我大部分的时间都花在考虑一些 most of my time is spent thinking about things
跟早衰症无关的事情上 that have nothing to do with Progeria at all.61 但是这并不意味着我完全 忽略了这些障碍的消极因素 Now this doesn’t mean that I ignore the negative aspects of these obstacles.62 当我无法做某事时 When I can’t do something like
例如长距离跑步或玩激烈的过山车 run a long distance, or go on an intense roller coaster,64 我当然知道我会错过什么 I know what I’m miing out on.65 但取而代之的，我选择侧重那些 But instead, I choose to focus on the activities 66 对我来说充满热情的活动 that I can do through things that I’m paionate about, 67 例如童子军 音乐或漫画书 like scouting, or music, or comic books, 68 又或任何关于我最爱的波士顿体育队的活动 or any of my favorite Boston sports teams.69 是的，所以——（笑声）Yeah, so--(Laughter)70 不过 有时我会通过一定的调整 However, sometimes I need to find a different way to do something
寻找一些不同于常人的方式去做某些事 by making adjustments，72 最终把这些东西归类于个人“能做”的范畴里 and I want to put those things in the “can do” category.73 正如方才各位所见的 军鼓一事 Kind of like you saw with the drum earlier.74 因此 这里有个视频片段 So here’s a clip
关于几年前我和我们 with me playing Spider-Man
Foxboro高中军乐队在一次中场演奏的 with the Foxboro High School Marching Band
《蜘蛛侠》的一个片段 at halftime a couple of years ago.78（视频）(Video)
♫ 蜘蛛侠主题曲 ♫ Spider-Man theme song ♫
80（掌声）(Applause)
谢谢 Thank you.82 好吧 好吧 所以—— All right, all right, so--
很酷是吧 That was pretty cool,84 这样我就已然能够完成 and so I was able to accomplish my dream 85 想在军乐队里演奏 小军鼓的这一梦想 of playing snare drum with the marching band, 86 因为我相信我可以 做到我所有的梦想 as I believe I can do for all of my dreams.87 所以同样希望你也用这种理念 以实现你自己的梦想 So hopefully, you can accomplish your dreams as well, with this outlook.88 下一个观点是： The next aspect to my philosophy is
我始终跟那些与我志同道合的人在一起 that I surround myself with people I want to be with，90 那些品质高尚的人们 people of high quality.91 我非常幸运的拥有 一个不可思议的家庭 I’m extremely lucky to have an amazing family, 92 他们始终支持着我 并贯穿这我整个的一生 who have always supported me throughout my entire life.93 在学校里我也相当幸运的 And I’m also really fortunate to have
拥有一群非常铁朋友们 a really close group of friends at school.95 我们同样都傻傻的痴迷于乐队 Now we’re kind of goofy, a lot of us are band geeks，96 但我们真正欣赏和享受 彼此的照顾和陪伴 but we really enjoy each other’s company, 97 我们互帮互助 当需要彼此帮助时 and we help each other out when we need to.98 彼此心有灵犀 We see each other for who we are on the inside.99 我们在一起共同进退 So this is us goofing off a little bit.100 现在我们高二 So we’re juniors in High School now，101 因此我们可以指导年轻的乐队成员 and we can now mentor younger band members, 102 作为一个这个集体的一员 as a single collective unit.103 我热衷于在一个 像乐队一样的集体里 What I love about being in a group like the band, 104 因为我们在一起制作音乐 is that the music that we make together，105 这种音乐是真的 是真诚的 它完全取代了我的早衰症 is true, is genuine, and it supersedes Progeria.106 当我享受制作音乐时 So I don’t have to worry about that
我可以不用去担心我的疾病 when I’m feeling so good about making music.108 我甚至因为参与制作了一部纪录片 But even having made a documentary, 109 而在电视上露过几次面 going on TV a couple of times,110 我感觉最棒的时候 I feel like I’m at my highest point
就是和周围的人在一起的时候 when I’m with the people that surround me every day.112 他们给我的生活提供了 真正的积极的影响 They provide the real positive influences in my life, 113 当然同时我也希望同样能给 他们的生活提供正能量 as I hope I can provide a positive influence in theirs as well.114（掌声）(Applause)
谢谢 Thank you.116 所以重点是 So the bottom line here，117 我希望大家感激和爱您的家人 is that I hope you appreciate and love your family, 118 爱您的朋友们和兄弟们 love your friends, for you guys, love you Bro’s 119 并答谢您的导师 and acknowledge your mentors,120 和您的社区 and your community,121 因为他们是您日常生活中 一个非常真实一面 because they are a very real aspect of everyday life, 122 他们可以在提供正能量方面 作出真正重大的贡献 they can make a truly significant, positive impact.123 接着说 第三个方面： The third aspect to the philosophy is,124 “到此为止，我们不会往回看很远。我们要始终向前看，开启新的门，致力新的事”—— Walt Disney（迪士尼老板）Keep moving forward.125 你可能知道这是引用自沃尔特迪斯尼的 Here’s a quote by a man you may know, named Walt Disney，126 它也是我最喜欢的引用之一 and it’s one of my favorite quotes.127 我总是尽量朝前看 I always try to have something to look forward to.128 寻找目标并努力 使我的生活更丰富多彩 Something to strive for to make my life richer.129 它不需要很大 It doesn’t have to be big.130 它可以是任何事 It could be anything from
比如期待下一次漫画书的出版 looking forward to the next comic book to come out, 132 或是去参加大型的家庭度假 or going on a large family vacation,133 又或是跟我的朋友们在一起 or hanging out with my friends, 134 去参加下一个高中足球比赛 to going to the next High School football game.135 然而 所有这些都促使我 However, all of these things keep me focused, 136 知道光明的未来在等待着我 and know that there’s a bright future ahead, 137 并给我勇气从而度过人生的艰难时刻 and may get me through some difficult times that I may be having.138 这种精神包括着保持一种前瞻性的思维状态 Now this mentality includes staying in a forward thinking state of mind.139 我尽力让自己不去 浪费能量为自己感到难过 I try hard not to waste energy feeling badly for myself, 140 因为当我这么做时 我会陷入一个悖论 because when I do, I get stuck in a paradox, 141 并且除了悲伤这不会给我 带来任何幸福或其他情感 where there’s no room for any happine or any other emotion.142 并不是说我完全忽略这种悲伤的感受 Now, it’s not that I ignore when I’m feeling badly，143 我只是坦然的接受了它 I kind of accept it,144 我接纳它并承认这个事实 I let it in, so that I can acknowledge it，145 同时做我需要去做的 并跨越这道屏障 and do what I need to do to move past it.146 当我少年时 我想成为一名工程师 When I was younger, I wanted to be an engineer.147 我想成为一名发明家 I wanted to be an inventor,148 一个可以让未来的世界 变的更美好的发明家 who would catapult the world into a better future.149 也许这促使我热衷于乐高玩具 Maybe this came from my love of Legos, 150 当我搭建它们时 and the freedom of expreion that I felt 151 我能自由的表达我的感受 when I was building with them.152 这理想也是源于我的家人和我的导师 And this was also derived from my family and my mentors，153 他们完整了我的人生 让我对自己感觉很好 who always make me feel whole, and good about myself.154 但是如今我的雄心有些改变 Now today my ambitions have changed a little bit, 155 我想步入生物领域 I’d like to go into the field of Biology,156 也许关于细胞生物学或遗传学 maybe cell biology, or genetics,157 或生物化学 或其他方面 or biochemistry, or really anything.158 这个我正望着的是我的一个朋友 This is a friend of mine, who I look up to, 159 弗朗西斯 柯林斯 美国国家卫生研究院主任 Francis Collins, the director of the NIH，160 这是我们在去年TEDMED聊天的场景 and this is us at TEDMED last year, chatting away.161 我觉得无论我选择要成为什么 I feel that no matter what I choose to become, 162 我坚信我可以改变世界 I believe that I can change the world.163 而且正因我努力地改变世界 我将会感到幸福和开心 And as I’m striving to change the world, I will be happy.164 大约在四年前 About four years ago, 165 HBO开始拍摄一部叫做 《山姆的生活》的纪录片 HBO began to film a documentary
166 是关于我的家人和我的 about my family and me called “Life According to Sam”.167 那是一个非常棒的经历 但那也只是四年前 That was a pretty great experience, but it was also four years ago.168 正如任何人一样 我对很多事物的看法已经改变了 And like anyone, my views on many things have changed, 169 希望由此变成熟 像我潜在的职业选择一样 and hopefully matured, like my potential career choice.170 然而 有些事情是自始至终没有改变的 However, some things have stayed the same throughout that time.171 比如我的心态和对人生的哲学 Like my mentality, and philosophy towards life.172 所以我想给你们看 So I would like to show you
173 一段我年少时的视频 a clip of my younger self from the film, 174 这段视频能更具体阐述我的人生哲学 that I feel embodies that philosophy.175（视频）(Video)
176 我知道它更多是关于基因方面的 I know more about it genetically.177 所以这是它微观的体现 So it’s le of an embodiment now.178 它一般像这样 It used to be like
179 而正是这个东西剥夺了我 做很多事的能力 this thing that prevents me from doing all this stuff, 180 也是这个东西导致其他孩子死去 that causes other kids to die,181 是它让每个人都感到压力 that causes everybody to be streed, 182 它是一种不正常的蛋白质 and now it’s a protein that is abnormal, 183 这种蛋白质削弱了正常的细胞结构 that weakens the structure of cells.184 所以 So，185 它却也减轻了我的负担因为现在 and it takes a burden off of me because now 186 我已经不用去多虑早衰症 I don’t have to think about
187 因为我已经是一个它的实例了 Progeria as an entity.188 好吧 还不错吧？ Okay, pretty good, huh?
189（掌声）(Applause)
190 谢谢 Thank you.191 所以 正如你所视我已经寻觅 这种乐观的思维方式很多年了 So, as you can see I’ve been thinking this way for many years.192 但是我之前从没真正将此付诸实践 But I’d never really had to apply all of these aspects of my philosophy 193 直到去年一月 to the test at one time, until last January.194 我真的病了 我得了支气管炎在医院住了几天 I was pretty sick, I had a chest cold, and I was in the hospital for a few days, 195 我被与我身边的一切隔绝了 and I was secluded from all of the aspects of my life that I felt 196 那些是我的生活 made me, me，197 那些是我的全部 that kind of gave me my identity.198 但是得知我将转好 But knowing that I was going to get better, 199 并期待着病愈的时候 and looking forward to a time that I would feel good again, 200 这种状态鼓励着我继续前进 helped me to keep moving forward.201 有时我必须勇敢 And sometimes I had to be brave,202 而这并不总是那么容易 and it wasn’t always easy.203 有时我踌躇 Sometimes I faltered,204 我也会有糟糕的时候 I had bad days，205 不过我明白 变得勇敢本来就不是一件容易的事儿 but I realized that being brave isn’t supposed to be easy.206 而对我来说 我觉得勇敢是继续前进的关键 And for me, I feel it’s the key way to keep moving forward.207 所以 总而言之 So, all in all，208 我不想浪费精力在悲伤中 I don’t waste energy feeling bad for myself.209 我和我希望在一起的人们在一起 I surround myself with people that I want to be with, 210 这样我才始终继续前进 and I keep moving forward.211 我希望大家利用这种乐观的态度 So with this philosophy, I hope that all of you, 212 面对你们的阻碍 regardle of your obstacles, 213 这样你们就能和我一样有一个愉快的人生 can have a very happy life as well.214 哦 等等 Oh, wait, hang on a second, 215 另外还有一条建议 one more piece of advice –-216（笑声）(Laughter)217 不要错过任何一个你能参与派对 Never mi a party if you can help it.218 我学校明晚将组织同学舞会 My school’s homecoming dance is tomorrow night, 219 我一定会去的 and I will be there.220 非常感谢 Thank you very much.221（掌声）(Applause)
